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Black fever in India: an epidemic rooted in poverty
By Parwini Zora and Daniel Woreck
30 December 2004
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Kala-Azarknown medically as visceral leishmaniasis
and in popular English as black feveris a curable illness,
but it has become the second most fatal parasitic disease in India,
claiming 60,000 victims annually. Only malaria causes a higher
number of deaths. Most of the victims of black fever are from
Indias rural poor.
Black fevers impact on public health was grossly underestimated
until a rapid increase in the number of infections and the breadth
of infected areas was noted during the last decade. An estimated
350 million people in 88 countries in inter-tropical and temperate
regions are said to be at risk from the disease.
Visceral leishmaniasis is caused by a microscopic parasite
transmitted by the phlebozomine sand fly, and inflicts those infected
with irregular bouts of fever, fatigue, substantial weight loss,
swelling of the lymph nodes, spleen and the liver, and anaemia.
It is also associated with the spread of potentially fatal secondary
infections such as pneumonia. If untreated or inadequately treated,
black fever usually results in death.
India accounts for half of the 600,000 visceral leishmaniasis
infections that are annually recorded worldwide. Most of the cases
in India come from the northern and eastern states of Bihar, Utter
Pradesh, West Bengal and Orissa, with Bihar alone accounting for
ninety percent of all Indias black fever victims.
In Bihar, Indias third most populous state, the disease
has grown by leaps and bounds since 1977. In that year only 17
districts were deemed affected by black fever. Today 33 of Bihars
37 districts routinely report black fever cases and 23 districts
are considered to be severely affected.
Rural poverty and disease
Although it is known to have the most fertile land in all of
India, Bihar is one of the countrys poorest states. Forty-four
percent of Bihars 83 million people live under the official
poverty line and 34 percent cannot afford even one proper meal
per day.
The majority of those afflicted with black fever are from the
families of landless agricultural labourers. The labourers are
employed at home for between four and nine months per year and
spend the remainder of the year seeking work in states like Punjab
and Delhi, where recent capital investment has been concentrated.
The single-room, thatched mud huts that the agricultural labourers
inhabit offer a perfect breeding ground for the sand flies, which
lay their eggs in the crevices found in the mud walls and flourish
in the huts high humidity environment during monsoon season.
Floods (which are endemic in Bihar, due to the lack of proper
infrastructure) and poor sanitation also help the spread of the
phlebozomine sand fly and, like malnutrition, contribute to lowering
the labourers general health, making them more susceptible
to infections, including black fever.
The destruction of Indias public health
care system.
The Kala-Azar epidemic has been compounded by the diseases
increasing resistance to standard antibiotics and by the privatization
of Indias health care system.
Indias public health care system was always woefully
inadequate. But since the Indian bourgeoisie abandoned its post-independence
national economic strategy in favor of making India a magnet for
foreign investment through privatization, deregulation and social
spending cuts, government investment in health care has plummeted.
Prior to 1991, government investment in public health care amounted
to 6 percent of Gross Domestic Product (GDP). In just over a decade
this figure had fallen to .9 percent, placing India among the
handful of countries worldwide that spend less than 1 percent
of their GDP on health care. Indeed, only four countries are deemed
to spend less per capita on public health care than does India.
In sharp contrast, India ranks an impressive 18th in private
health care spending (equal to 4.2 per cent of GDP). According
to Ravi Duggal of the Centre for Enquiry into Health and Allied
Themes (CEHAT), private health care accounts for 70 per cent of
primary medical care and 40 per cent of all hospital care in India
and employs 80 per cent of the countrys medical personnel.
The World Health Organisations Commission on Macroeconomics
and Health in India recently reported that Indias
public health sector faces a severe shortage of qualified doctors
and inadequate or non-existent infrastructure. Per 10,000 persons,
only 45 registered medical practitioners and 8.9 hospital beds
are available.
Because of the lack of public services, even poor Indians are
increasingly reliant on private health care. A survey of 100 Rajasthan
villages by researchers from the Massachusetts Institute of Technology
and Princeton University found that even among poor households
only 34 per cent used public health facilities. And, in the absence
of adequate public health care, many are turning to amateur doctors
and faith healers, even to treat such deadly diseases as tuberculosis
(TB) and malaria.
Because of the cost of travel and the fear of losing income
while they are away, the rural sick tend to seek out the moderately
better health care services that are available in Indias
towns and cities only when they are gravely ill. As a result,
the treatments they require are far more costly. Conditions that
could be easily treated, and at little expense, often prove fatal
because they have reached the advance stage by the time rural
Indians seek treatment.
Because half of all Kala-Azar patients now fail to respond
to the conventional drug treatment for the disease, the cost of
treating black fever has risen substantially, making it prohibitively
expensive for the poor to seek help from private sector physicians
and hospitals. The average black fever patient requires a month-long
hospitalisation, with daily injections costing a total of $100
US per patient, or five times the average monthly income of a
five-person family in rural Bihar. But given the state of the
public health care system, using private medical services is increasingly
the only option. As a result many are forced to turn to private
money-lenders, who charge interest rates of up to 34 percent per
annum. This is by no means a problem restricted to black fever
victims. Health costs are now the single largest contributor to
rural debt.
Basic human needs sacrificed to profit making
Liberalisation of the health sector has also put an end to
the governments control over the distribution and pricing
of many ordinary drugs. As a result many are now out of the reach
of the poor. The Indian pharmaceutical industry, meanwhile, has
seen its profits soar. Drug prices have risen steadily since the
previous BJP(Baratiya Janata Party)-led NDA (National Democratic
Alliance) government passed legislation to comply with the WTOs
rules on intellectual property. Last year Indias 11 leading
drug companies reported a phenomenal 23 percent increase in revenues.
The Indian government has identified the pharmaceutical industry,
along with computer software and business processing, as key to
its strategy of export-led growth. But the expansion of the Indias
pharmaceutical industry holds out little hope for the victims
of diseases such as black fever that primarily affect the poor.
According to public health analyst Mira Shiva, India
produces and sells drugs at the lowest prices anywhere in the
world but the levels of poverty are such that less than 25 percent
of Indias one billion people can afford medicine. ... Liberalisation
has only widened the gap. In an interview with the Peoples
Health Movement website, Shiva elaborated further, India
is still battling vector and water-borne diseases but no pharmaceutical
company is interested in producing or marketing drugs against
these because of the low profit margins, while there is competition
for diseases such as diabetes and heart problems, which mostly
affect the affluent.
Black fever is a curable disease. The pharmaceutical industry
in India and internationally clearly has the technical prowess
to develop affordable drugs to fight it. But big business has
little interest in producing drugs to benefit Indias poor.
They are too busy developing curable drugs and medications for
the well-off in India and the advanced capitalist countries, including
mood elevators, diet pills, and drugs for baldness.
In the absence of serious research by the pharmaceutical industry,
the Institute for One World Health, a US non-profit organisation,
is working with volunteer medical personnel in India to try to
develop a new treatment for Kala-Azar. One World Health
has been conducting clinical trials on a new, cheaper drug in
Bihar, and hopes before the end of 2005 to receive approval from
Indian government regulators to distribute it generally.
According to Dr. Shyam Sundar, who is a professor of medicine
at Banares Hindu University and the person leading the One-World
trials in Bihar, the new treatment, which does not require hospitalization
to administer, is expected to cost $50US. While this is half the
cost of the current drug and patients will potentially save money
because they can remain at home while taking the drug, $50 still
represents a large, if not prohibitive, sum for Bihars poor.
Also the treatment does remove the threat of a repeat infection.
The only means to eradicate black fever as a fatal disease
is to develop adequate social and medical infrastructure, as well
as affordable medication.
Instead the growth of rural poverty, the plight of broad masses
in the urban cities, and the destruction of the public health
system is creating conditions for an expansion of the epidemic
to other regions. Recently Kala-Azar has increased amongst
HIV/AIDS patients. India has the second largest concentration
of HIV/AIDS patients after Africa and a further spread of Kala-Azar
could result in a health disaster. Nepal, which borders Bihar,
is already reporting thousands of Kala-Azar victims, and
this figure could swell to tens if not hundreds of thousands if
urgent action is not taken.
See Also:
Congress-led government offers band-aid
to haemorrhaging rural India
[16 December 2004]
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