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Major parties treat carers with contempt
By Peter Byrne, Socialist Equality Party candidate for the
Senate in Victoria
24 November 2007
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In the course of the election campaign, both major parties
have made gestures of support towards carersthe largely
ignored, but significant constituency that looks after the frail
elderly and those with physical, intellectual and psychological
disabilities. The various policies and promises made by Prime
Minister Howard and opposition leader Rudd, however, will not
resolve the many and varied needs of carers and their charges.
There are an estimated 2.6 million informal carers in Australiamore
than 12 percent of the total population. Of these, nearly half
a million are primary carers, responsible for providing the majority
of care to another person. Many are spouses or partners, children
looking after their parents, and parents caring for a disabled
son or daughter.
For many, caring is a psychologically and emotionally stressful
task, made more difficult by inadequate financial support and
other assistance. Carers are constantly juggling their time to
make use of the bewildering, but limited, array of respite and
home care services from local, state and federal governments.
Many find that keeping a job is unaffordable because of the prohibitive
cost of organizing professional care.
Comments from a focus group cited in a Task Force on Care
Costs report published last week highlighted the difficult
situation facing carers. Most people want supportnot
to be carriedto stay in the workforce, one focus group
participant said. I felt I was being penalised for having
a daughter with a disability. I was forced out of the workforce
into poverty. There is no childcare for children with autism;
the boss doesnt understand that.
Another commented: Sometimes youre doubly disadvantagedeven
triply. Youre caring for someone with a disability or frail
and aged, youre not working, which means youre in
that poverty cycle, and often, especially with kids with disabilities,
the rate of marriage breakdown is about 90 percent.
A survey entitled The Wellbeing of AustraliansCarer
Health and Wellbeing, published last month provided a chilling
overview of the levels of stress and depression among carers.
Its results are based on the Personal Wellbeing Index (PWI)a
measure that combines indices of health, personal relationships,
safety, standard of living, achieving in life, community connectedness
and future security, to provide an overall estimate of personal
satisfaction.
PWI surveys initiated in 2001 by Deakin Universitys School
of Psychology have established a large body of comparative data.
The average PWI for all Australians varies between 73.4 and 76.4
out of a possible 100, but the average PWI for carers is well
outside the normal range at just 58.5. To underline the alarming
nature of the result, the reports authors drew a comparison
with body temperatureswhere a reading so far away from the
norm would be life-threatening.
The report noted that the result was the lowest value
we have ever recorded for a large group of people. By way
of comparison, the PWI for those on low annual incomes of less
than $15,000 was 71.4, and for the unemployed 66.6still
far lower than that for carers. The survey reported that a staggering
65 percent of carers suffered some form of depression, with 37
percent suffering severe or extremely severe depression. By way
of comparison, a federal government assessment in 1997 found that
6 percent of the population as a whole suffered depression.
The report found that 20.6 percent of carers are unemployed.
They suffered a dramatic drop in income, related to difficulties
in balancing a career and caring responsibilities. Average annual
income for male carers is $24,800 less than the Australian average,
and for females $15,300 less. Financial difficulties are further
exacerbated by the increased costs associated with caringincluding
transport, professional care and medical costs.
The report found that 45 percent of primary carers have household
incomes in the two lowest income quintiles, compared to 23 percent
for non-careers. The main contributing factor is that 47 percent
of primary carers rely on government pensions and allowances as
their main source of income.
Yet the federal government provides a pittance. The maximum
fortnightly carer payment for singles is $525.10 and $438.50 for
each member of a couple. But the payment is both asset and income
tested, drastically reducing the number of people eligible and
the amounts paid out. A fortnightly carer allowance of $98.50
may also be paid, but is completely inadequate to cover extra
costs.
Along with an aging population, the failure of Labor and Coalition
governments to fund alternative forms of care over the past two
decades has contributed to the steadily rising number of carers.
The social responsibility of looking after those unable to care
for themselves has effectively been offloaded onto individuals.
And the cost savings to government have been huge.
According to the latest estimates, the federal government pays
out $1.3 billion a year on carer payments and $1 billion on carer
allowances. However, an Access Economics study in 2005 estimated
the savings to government at a massive $30.5 billionthe
cost of replacing informal, unpaid carers with professional care.
Given the size of the constituency involved, Labor and Liberal
both pay lip service to the importance of carers, but their promises
amount to inadequate bandaid solutions for what is an immense
social problem. Howard has announced extra money for respite care
and home visits by nurses, as well as an annual $500 utilities
allowance to those on carer paymentsa drop in the bucket
that will do virtually nothing to alleviate financial stress.
Labor has matched the governments utility payment and made
its own proposals for the disabled. But the thrust of Labors
policy is to press for reform of federal-state relationsopening
the door for sweeping rationalisation and cost cutting.
Much of the extra money promised is a straight hand-out to
the expanding for-profit private businesses involved in providing
home care, nursing visits and respite care for the aged and disabled.
Aged care has become big business, with large chains not only
controlling nursing homes but extending their services into other
areas.
In September 2007, the Carers Alliance registered as a political
party and decided to stand Senate candidates in four states. The
step clearly reflects the anger felt by many carers at the contempt
of the major parties towards their plight. At budget time, the
Howard government has repeatedly ignored the modest demands of
Carers Australia, for instance, for a doubling of the carer allowance
from $98.50 a fortnight to $197. But, like other single issue
parties, the Carers Alliance in no way challenges the two-party
system but is based on pressuring it.
Carers should not have to beg for handouts. The SEP insists
that high quality aged and disabled care must be freely available
to all. Access to high quality care in public institutions with
qualified staff, proper facilities and specialised medical attention
should be a right that is not limited to the wealthy. Moreover,
a full range of options must be provided that correspond to the
different situations confronted by those who are unable to look
after themselves. Only in that way can family members make a genuinely
free choice. Those who decide to opt for providing care at home
should receive a living wage and have access to free, high quality
respite care whenever needed, to allow time for relaxation, study,
sporting activities and cultural interests. None of these elementary
demands is compatible with an economic and social system that
is based on private profit, rather than social need.
Authorised by N. Beams, 100B Sydenham Rd, Marrickville,
NSW
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Vote 1 Socialist Equality Party on November 24
[23 November 2007]
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